Hemophilia and other inherited bleeding disorders are a group of rare conditions caused by intrinsic or genetic defects which causes a person to bleed for longer periods of time than normal. Years ago, having a bleeding disorder meant extremely compromised lives, not just for the patients but for their families as well. Today, thanks to strong treatment alternatives and a national coordinated system of health care, our children and adults can live healthy, productive lives.
One of the greatest challenges faced by someone with a bleeding disorder is finding the right information and resources when they need it. The Bleeding Disorder Alliance Illinois (BDAI) to help meet those needs.
Since 1949, BDAI has provided accurate and timely information for those living in the state of Illinois with a bleeding disorder. Governed by a Board of Directors and a strong professional staff, BDAI has provided individuals and their families with vital knowledge and made tremendous strides in:
Consumer and Family Information and Service Coordination Support
Consumer/Family Education Events
Presentations to Schools, health fairs and community groups
Liasion with community based organizations
Translation services - Spanish / English
Camp Warren Jyrch - Summer Camping Experience for boys and girls from ages 7 - 18
HFI Emergency Assistance Fund/Financial Assistance Program
Peer Group Facilitation Efforts for Young
Bradley Krueger Scholarship offering annual advanced education assistance for the bleeding disorder community
Leadership efforts developing and facilitating legislative and administrative advocacy needs on behalf of the bleeding community
Support continued access to medical product and services by building collaborative relationships with bleeding disorder providers
Liaison with state and national legislators
Collaboration with other health care organizations
Community education regarding up-to-date research activities
Contribution to special research funds
Health Insurance: Individual, family, and financial/health counseling
Today, thousands of individuals and families affected in Illinois depend on BDAI for advocacy, education and empowerment.