Bleeding Disorders Alliance Illinois, Chicago, IL - Localwise business profile picture

Bleeding Disorders Alliance Illinois

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About Bleeding Disorders Alliance Illinois


Story

Hemophilia and other inherited bleeding disorders are a group of rare conditions caused by intrinsic or genetic defects which causes a person to bleed for longer periods of time than normal. Years ago, having a bleeding disorder meant extremely compromised lives, not just for the patients but for their families as well. Today, thanks to strong treatment alternatives and a national coordinated system of health care, our children and adults can live healthy, productive lives.

One of the greatest challenges faced by someone with a bleeding disorder is finding the right information and resources when they need it. The Bleeding Disorder Alliance Illinois (BDAI) to help meet those needs.

Since 1949, BDAI has provided accurate and timely information for those living in the state of Illinois with a bleeding disorder. Governed by a Board of Directors and a strong professional staff, BDAI has provided individuals and their families with vital knowledge and made tremendous strides in:

Education

FactorNet Newsletter

Information Library

Consumer and Family Information and Service Coordination Support

Consumer/Family Education Events

Presentations to Schools, health fairs and community groups

Liasion with community based organizations

Translation services - Spanish / English

Support Services

Camp Warren Jyrch - Summer Camping Experience for boys and girls from ages 7 - 18

HFI Emergency Assistance Fund/Financial Assistance Program

Media Alert

Peer Group Facilitation Efforts for Young

Bradley Krueger Scholarship offering annual advanced education assistance for the bleeding disorder community

Advocacy

Leadership efforts developing and facilitating legislative and administrative advocacy needs on behalf of the bleeding community

Support continued access to medical product and services by building collaborative relationships with bleeding disorder providers

Liaison with state and national legislators

Collaboration with other health care organizations

Research

Community education regarding up-to-date research activities

Contribution to special research funds

Counseling

Health Insurance: Individual, family, and financial/health counseling

Today, thousands of individuals and families affected in Illinois depend on BDAI for advocacy, education and empowerment.

Categories
Nonprofit
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